Zareinu

Information and Links

Government / Funding assistance:
For general information on all disability programs:
For online applications for SSAH
For respite services
For Easter Seals registration
For incontinence application
 For Ontario Disability Support Program
Autism Spectrum Disorder:

 

  • Autism is a brain development disorder characterized by impaired social interaction and communication, and by restricted and repetitive behaviour.
  • People with Autism have trouble with everyday social interaction, communication and imagination.
  • Children show signs of Autism before they reach three years of age.
  • Asperger Syndrome and PDD-NOS are two other disorders under the Autism Spectrum.
  • Researchers believe that a combination of genetics and environmental factors cause Autism.
  • There is no cure for Autism. There are methods and therapies that help deal with the symptoms.

 

Resources:
http://www.aspergers.ca – The official Aspergers Society of Ontario website.
http://www.autism-insar.org – A website for a scientific and professional organization devoted to advancing knowledge about Autism spectrum disorders.
http://www.autism.ca   – Autism treatment services of Canada website.
http://www.autism.com – The Autism Research Institute (ARI) website. ARI is a non-profit organization, devoted to conducting research, and to disseminating the results of research about Autism.
http://autism.healingthresholds.com  – A web site dedicated to healing the lives of families touched by Autism. The site provides daily updates of Autism therapy research and news.
http://www.autism.net – Offers resources, training and conferences for professionals, parents and other caregivers.
http://www.autism.org.uk – The website contains information about Autism research currently taking place around the world.
http://www.autismawarenesscentre.org – A website full of resources for families living with Autism. The website includes a comprehensive list of books, links and blogs.
http://www.autismcentral.ca – A website for a Montreal based not for profit foundation which supports rehabilitative, vocational and residential services for over 600 children and adults with intellectual disabilities.
http://www.autismconnects.com – A members-only website that was created for anyone who is affected by Autism, or involved in Autism research.
http://www.autismone.org – A non-profit charity organization, containing alternative resources for therapies.
http://www.autismontario.com/Client/ASO/AO.nsf/object/Forgotten+Report+Autism+Ontario/$file/Forgotten+Report+Autism+Ontario.pdf– A link to public policy paper addressed to the Government of Ontario, with recommendations for supports and services for Ontario adults with Autism & adults with Aspergers.
http://www.autismresearch.ca – A research site dedicated to finding the causes, origins and effects of Autism spectrum disorders, and the effects of treatment on persons with an ASD or related disorders.
http://www.autismresearchcentre.com -The mission of the ARC is to understand the biomedical causes of Autism spectrum conditions, and develop new and validated methods for assessment and intervention.
http://www.autismsocietycanada.ca – The official website of the Autism Society of Canada.
http://www.defeatautismnow.com – A series of conferences aimed at parents, caregivers and researchers.
http://www.helpautismnow.com – A website that helps to screen, detect and diagnose Autism.
http://ndar.nih.gov/ndarpublicweb – An Autism research sharing database.
http://www.neurodiversity.com/library_index.html – The online library of the History of Autism research behaviourism and psychiatry.
http://www.nichd.nih.gov/autism – The website provides easy access to the most current information about research projects, publications, news releases, and other activities related to Autism and similar disorders.
http://www.ont-autism.uoguelph.ca – Offers information and communication tools to connect adults with Autism, family members, caregivers, friends, support workers, teachers, administrators and policymakers.
http://www.parentbooks.ca/index.htm – A comprehensive selection of resources available anywhere from planning a family to everyday parenting issues to special needs of all kinds.
http://www.psychology.uwo.ca/autismgeninfo.htm – A University of Western Ontario Autism research website.
http://www.talkautism.org – A communication service that is shared by many organizations to access a common database of resource directories, distance learning library, and special message boards.
Down Syndrome: 
  • Down syndrome is a chromosomal disorder caused by the presence of all or part of an extra 21st chromosome.
  • It is often associated with some impairment of cognitive ability, physical growth and facial appearance.
  • It occurs in approximately 1 per 800 -1000 births.
Resources:
http://aba-materials.com – An educational tools site for special needs.
http://www.acds.org – A website containing various resources for parents of children with Down syndrome.
http://www.ahrc.org – The mission of AHRC is to teach, support and advocate for children and adults with intellectual and other developmental disabilities.
http://www.cdss.ca – The Canadian Down syndrome society official web page.
http://www.dhg.org.uk – A charity offering support and information relating to heart conditions associated with Down syndrome.
http://www.downsed.org – An educational portal for a site dealing with special education.
http://www.downsyn.com/index.php – Information for new parents.
http://downsyndrome.com – A social network for those with Down syndrome.
http://downsyndromehelp.boomja.com/Down-Syndrome-Resources-by-State-53376.html – A list of resources in every USA state. The site also offers links to blogs and educational sites.
http://dsat.ca – The official Down syndrome association of Toronto Website.
http://www.dsnetwork21.org – A New Jersey based network, offering support and help as well as information about Down syndrome.
http://www.dsrf.org – Down syndrome research foundation website.
http://www.dsrtf.org – The website’s goal is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition for individuals with Down syndrome.
http://www.kidshealth.org/parent/medical/genetic/down_syndrome.html  – An overview of facts about Down syndrome.
http://www.nads.org – Offers links to support groups and resources.
http://www.ndsccenter.org – A community for the families of children with Down syndrome.
http://www.ndss.org – A website dedicated to increasing public awareness about Down syndrome; to assisting families in addressing the needs of children born with this genetic condition; and to sponsoring and encouraging scientific research.
http://www.specialreads.com – A resource site to help teach reading to children with Down syndrome.
Rett Syndrome:
  • Rett syndrome is a childhood neurodevelopmental disorder characterized by normal early development followed by loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, gait abnormalities, seizures and mental retardation.
  • It cannot be cured.
  • It affects females almost exclusively.
  • The disorder was identified by Dr. Andreas Rett, an Austrian physician, who first described it in a journal article in 1966. It was not until 1983 that the disorder was more generally recognized.
  • It affects one in every 10,000 to 15,000 live female births.
  • Caused by a mutation on the MECP2 gene of the X chromosome.
Resources:
http://www.healthlinkbc.ca/kbase/nord/nord182.htm – Health Link British Columbia.
http://www.ninds.nih.gov/disorders/rett/rett.htm – National Institute of Neurological Disorders and Stroke.
http://www.rett.ca/content/what-rs -Ontario Rett Syndrome Association.
http://www.rettsyndrome.mb.ca – Manitoba Rett Syndrome Association.
http://www.rettsyndrome.org  – The international Rett syndrome foundation website.
http://www.rettsyndrome.org.uk – Rett Syndrome Association UK.
http://www.rettsyndromealberta.org/missionstmt – The official website of the Rett Syndrome Society of Alberta.
http://www.sfn.org/index.cfm?pagename=brainbriefings_rett_syndrome – The Website of the Society for Neuroscience.
Cerebral Palsy:
  • Cerebral Palsy refers to any one of a number of neurological disorders that appear in infancy or early childhood and permanently affect body movement and muscle coordination but don’t worsen over time. It is caused by abnormalities in parts of the brain that control muscle movements.
  • It cannot be cured.
  • Characterized by an inability to fully control motor function, particularly muscle control and coordination.
  • There are three main types: spastic, stiff and difficult movement, athetoid, involuntary and uncontrolled movement, ataxic, disturbed sense of balance and depth perception.
 
Resources:
http://www.bccerebralpalsy.com – The Cerebral Palsy Association of BC.
http://www.cpalberta.com – Cerebral Palsy Association of Alberta.
http://www.cpfsj.ca – Cerebral Palsy Foundation of Saint John.
http://cpirf.org/stories/category/fact-sheets Cerebral Palsy International Research Foundation.
http://www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm – National Institute of Neurological Disorders and Stroke.
http://www.ofcp.on.ca – Ontario Federation for Cerebral Palsy.
http://www.scope.org.uk – Scope, dedicated to disabled people achieving equality.
http://www.ucp.org – United Cerebral Palsy.
 
Developmental Delay:
  • Occurs when children have not reached specific milestones by the expected time period. For example, if the normal range for learning to walk is between nine and 15 months, and a 20-month-old child has still not begun walking, this is considered a developmental delay.
Resources:
General Resources:
http://www.aap.org – American Academy of pediatrics website.
http://www.aapd-dc.org/index.html – American Association of People with Disabilities.
http://www.toronto.ca/children/sp_needs.htm – City of Toronto website for children with special needs.
http://www.health-canada-pharmacy.com http://quotecorner.com/online-pharmacy.html